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Having someone tell you you are not sick the symptoms do not match and you what is wrong you is a slap in the face because we all go through it we listen to our bodies and tell of the symptoms but when stanford said there was nothing wrong i felt so terrified, orphan, all alone, i went back to my doctor at san mateo and finally 4 years later got my diagnosis and doctors who listened because i made noise i spoke up. The opinions expressed in this column are not those of Scleroderma News or its parent company, BioNews, and are intended to spark discussion about issues pertaining to scleroderma.
#GAY SAGET NAME PROFESSIONAL#
Never disregard professional medical advice or delay in seeking it because of something you have read on this website. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. It does not provide medical advice, diagnosis, or treatment. Note: Scleroderma News is strictly a news and information website about the disease. You used your celebrity status to honor your sister’s legacy and raise awareness, and you changed millions of lives with your efforts. Fly high, my friend. Your contributions are invaluable to our bereaved community. While we never knew each other, because of scleroderma, our lives will be forever intertwined. So, I want to take a moment to thank you, Bob Saget. I fear the momentum for scleroderma advocacy and awareness may begin to wane because of it. Only a few celebrity deaths have brought out intense emotions in me. Sitting under a heated blanket trying to warm up my aching body, I felt like I had lost a friend. I was having a particularly rough day when I heard of Bob’s untimely death. We must speak up and speak loudly, raise awareness and funds, educate people, and tell anyone who will listen about this disease. With continued research, new therapies could provide comforting measures for those of us who suffer from scleroderma’s debilitating effects.īob Saget’s death should be a personal call to all who suffer from this disease. Lifesaving measures could occur earlier with proper research, adequate funding, and the training of medical personnel.
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Instead, we must manage our symptoms, which means that receiving an early diagnosis is crucial. There currently is no cure for scleroderma.
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The time it takes to receive a definitive diagnosis can be deadly.
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Like Bob Saget’s sister and Queen Latifah’s mother, I’d gone to many different specialists to find out exactly what was wrong with me. While I’m not a celebrity, I also hadn’t heard of the disease when I was diagnosed four years ago. “When my mom was diagnosed with … scleroderma in 2013, we’d never even heard of it before,” she told the magazine.